This is a follow on for this post. It seems that the authorities are not currently replying to letters and are, at this stage, collecting information on conditions and evaluating which they will include in the list and which they will not.
If you are not receiving any help at the moment please visit this page (for UK residents only). Scroll down to the bottom of the page to the last question in the list.
This was one of the places I wrote to. It is necessary for our condition to be recognized and added to the list. We need as much help as we can get. Unfortunately I do not have any information about help in other countries.
If you are not receiving any help at the moment please visit this page (for UK residents only). Scroll down to the bottom of the page to the last question in the list.
Q. Can I apply for a Medical Exemption Certificate if I have another long term medical condition not listed?
A: Only the exempting medical conditions listed on the FP92A are eligible at present. The government is currently reviewing other long term medical conditions.This was one of the places I wrote to. It is necessary for our condition to be recognized and added to the list. We need as much help as we can get. Unfortunately I do not have any information about help in other countries.